In our newest podcast episode, Dr. Holly Etchegary talks to Jason Wiseman and Janine-Taylor Cutting about how patients and family members influence and progress the health-related research.
Take a look ❤️
Tag: Public Outreach
Episode 23 – Patient-oriented research from a patient partner & leader perspective
We are pleased to air our new podcast!
In this episode, Janine Taylor Cutting an Sevtap Savas talk to Lisa Ridgway, a powerful patient partner and leader from British Columbia
Together, they dissect what patient-oriented research means and how we all can contribute to this meaningful research strategy
#NewfoundlandAndLabrador#PatientLeaders#PublicEngagement#PublicOutreach#StrategyForPatientOrientedResearch#podcasting
Episode 22 – “Cancer is preventable, treatable, beatable”
We are pleased to air our new podcast!
In this episode, Tracy Slaney and Sevtap Savas talked to Barry Stein, the director of Colorectal Cancer Canada, a community support organization focusing on colon and rectal cancers in Canada.
Barry candidly shared his story with cancer and how this experience shaped his advocacy and leadership.
Take a look.
Advocating to House of Assembly_Newfoundland and Labrador
Advocacy is something we naturally do when we partner with public members.
Pleased to advocate on behalf of people affected by cancer in Atlantic Canada by emailing the following to all 40 members of the House of Assembly in Newfoundland and Labrador:
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Dear Members of House of Assembly – Newfoundland and Labrador,
Cancer touches everyone.
When it strikes us, or someone close, we know that they need support, and we all want to help.
As an elected representative, your role is crucial, and your actions can save lives.
The Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) is part of the national Marathon of Hope Cancer Centres Network. Our membership includes 15 members from Atlantic Canada, 11 of whom are public members affected by cancer. I proudly lead this group.
Together, ACC PAC has identified priorities to improve access to care, and has published an academic paper with their results – you can access it here free of charge: https://link.springer.com/article/10.1007/s44250-025-00201-1
We invite you to take a look at the priorities identified in our paper to explore ways to address them in our region, and reach out to us with suggestions about how you may be able to fast-track improvements.
We are happy to meet in person or virtually.
Thank you and kind regards,
Sevtap
Thanking Bev P. for her valuable help with the content.
Sevtap Savas, PhD, ACC PAC lead.
Year end report to the community
Dear folks,
We are pleased to report back to the community in Atlantic Canada about our impactful and productive work.
You can find a recap published in Telegram here: https://www.saltwire.com/newfoundland-labrador/letter-atlantic-cancer-consortium-patient-advisory-committee-reflects-on-its-successful-year
A more detailed report is posted below.
We thank you for your support to our activities.
On behalf of ACC PAC, Sevtap Savas, PhD. St. John’s
Podcast episode 21 – “But Don, all cancers are treatable”
Welcome to our new podcast!
Our guest today is Dr. Don Desserud!
Don has brough fresh perspectives to our podcast as someone with lived experience of cancer and as a political science professor from PEI.
We talked mainly about two important topics:
1. Impact of clinic communication on patients and importance of trauma-informed communications by healthcare providers
2. Practical tips for advocacy at the government level
We hope that you will enjoy this episode as much as we have.
Conference recordings_Cancer is Personal: Humanizing Precision Medicine in Atlantic Canada
We are pleased to share the recorded talks delivered on March 15, 2025, as part of the public conference named Cancer is Personal: Humanizing Precision Medicine in Atlantic Canada!
We thank all speakers for making their talks public and tech staff for making this possible.
On behalf of ACC PAC, Sevtap Savas, PhD.
New paper by the Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC)
We are pleased to share our scholarly paper published in Discover Health Systems journal this week!
In this paper, we describe the formation of our team (ACC PAC) and the patient and family priorities its members identified regarding cancer and precision medicine in Atlantic Canada.
The ACC PAC identified priorities in two categories:
- Addressing needs of everyone affected by cancer equitably, and the whole patient and family
- Increasing awareness, access, and affordability of precision medicines
You can freely access this manuscript here: https://link.springer.com/article/10.1007/s44250-025-00201-1?utm_source=rct_congratemailt&utm_medium=email&utm_campaign=oa_20250324&utm_content=10.1007/s44250-025-00201-1
Better days ahead
Sevtap Savas, PhD.
Podcast Episode 20 – Experiences and perspectives by a queer cancer warrior
Please join Stephanie Howlett chatting about ovarian cancer, being a cancer warrior and queer person affected by cancer in this new powerful podcast episode!
Podcast Episode 19 – No backing down – Stomach cancer, self-advocacy, and living without a stomach
Please join us in this heart-warming chat with Lianne Mantla-Look about her journey of stomach cancer, resilience, self-advocacy and more.
Lianne is an amazing advocate with lived experience. We are so excited that she joined us for this podcast.
Take a look.