We are pleased to share this podcast with Stephanie Howlett, Judy D. Whitty, Tracy Slaney, and Sevtap Savas on Patient Voice in Cancer: what it means? how it looks? what can be done to further progress it?
Take a look 🙂
We are pleased to share this podcast with Stephanie Howlett, Judy D. Whitty, Tracy Slaney, and Sevtap Savas on Patient Voice in Cancer: what it means? how it looks? what can be done to further progress it?
Take a look 🙂
I am excited to note that I will be receiving the Exceptional Leadership in Patient Involvement in Cancer Research Award by the Canadian Cancer Research Alliance (CCRA) in Nov 2025.
Congratulations to all awardees – what a great cohort of folks who are dedicated to make a difference at the cancer front!
I am so happy to bring this Award to Newfoundland and Labrador, and Atlantic Canada.
This prestigious and national award goes to you folks: Community in #NewfoundlandAndLabrador and in #AtlanticCanada, my collaborator colleagues and assistants, and our funders who transformed me into a public communicator and engager.
Over the last 6 years, together we have been working very hard to make a difference in the lives of people, families, and communities affected by cancer.
The Public Interest Group on Cancer Research has been particularly strong voice in Newfoundland and Labrador. It was formed and sustained by funding provided by the Office of Public Engagement in St. John’s, Memorial University of Newfoundland. Sadly, this wonderful unit, its excellent staff, and its funding do not exist anymore. This is just one example of how the budget cuts impact the community in NL – no one wins here.
The Atlantic Cancer Consortium Patient Advisory Committee is another successful partnership albeit being a young one (formed less than 2 years ago). I thank our funders/MOHCCN for making our work and committee a possibility.
NLSUPPORT has always been there to give us a hand – I cannot thank its wonderful staff.
Among all the units I am associated with at Memorial University, it has been my clinical colleagues at the Discipline of Oncology, who have fully supported and understood what I have been trying to do in my engagement work. Special thanks go to them.
I thank Quality of Care NL for nominating me for this award, and public partners, leaders, and colleagues supporting my nomination.
I always question where my heart and mind are. Nowadays they are with my family. My mom, Nimet Altunbas, died of cancer four years ago. My sister, Mehtap Savas, is a long term survivor of cancer. I would die for them.
I work very hard to make a difference in the lives of people affected (or will be affected) by cancer – I have no regret for working hard, failing, getting up, getting burnt out, and succeeding along the way. My only regret is that my family has not benefited and will not benefit from my hard work. From my young age on, they supported my ideals and not even once complained about me being away from them (since age 11). I proudly note that my sister Mehtap is my biggest supporter, as she understands the gap we have been addressing together with public partners in the lives of people affected by cancer.
Last, I am Turkish and I am an immigrant to Canada. This award is a testament to immigrants’ abilities and contributions to the society and academia in Canada. If there are other immigrant folks out there who would like to start public and patient engagement, please just go ahead – future is brighter.
My commitment to make things better for the next person and family affected by cancer is continuous. Please join me in supporting them in any way you can.
With gratitude
Sevtap Savas, PhD. Oct 21, 2025 St. John’s
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In case you are wondering what we have been doing with public partners, here is a short summary
You can read my full award interview here: https://www.ccra-acrc.ca/wp-content/uploads/2025/10/2025_Interview_SSavas_EN.pdf and listen to a snap shot of it in the YouTube video below.
Dear folks,
We are pleased to report back to the community in Atlantic Canada about our impactful and productive work.
You can find a recap published in Telegram here: https://www.saltwire.com/newfoundland-labrador/letter-atlantic-cancer-consortium-patient-advisory-committee-reflects-on-its-successful-year
A more detailed report is posted below.
We thank you for your support to our activities.
On behalf of ACC PAC, Sevtap Savas, PhD. St. John’s
We are pleased to share the recorded talks delivered on March 15, 2025, as part of the public conference named Cancer is Personal: Humanizing Precision Medicine in Atlantic Canada!
We thank all speakers for making their talks public and tech staff for making this possible.
On behalf of ACC PAC, Sevtap Savas, PhD.
We are pleased to share our scholarly paper published in Discover Health Systems journal this week!
In this paper, we describe the formation of our team (ACC PAC) and the patient and family priorities its members identified regarding cancer and precision medicine in Atlantic Canada.
The ACC PAC identified priorities in two categories:
You can freely access this manuscript here: https://link.springer.com/article/10.1007/s44250-025-00201-1?utm_source=rct_congratemailt&utm_medium=email&utm_campaign=oa_20250324&utm_content=10.1007/s44250-025-00201-1
Better days ahead
Sevtap Savas, PhD.
We will update this page as we finalize the schedule
Register http://bit.ly/4h4spjb
Special guest, Darrell Fox

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Lianne Mantla-Look

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Derrick Bishop

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Dr. Cara MacInnis

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Gilles LeBlanc

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Jennifer Coish

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Dr. Amanda Bolderston

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Dr. Rodney Quellette

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Dr. Angela Hyde

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Dr. Ravi RamjeesinghMD, Ph.D

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Kathleen Buckley

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Chantal Boudreau

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Michelle Barton

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Marianne Arab

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Nicole Cardoulis

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Olivier Savoie

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Dr. Sevtap Savas

***For schedule, please see here: https://strength-in-community.ca/2025/02/18/conference-schedule-cancer-is-personal-humanizing-precision-medicine-in-atlantic-canada/
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We are pleased to invite all Atlantic Canadians to this free, virtual, and public conference on cancer and Precision Medicine on March 15, 2025!
This conference is organized by the Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC), consisting of 14 members from across Atlantic Canada.
The conference will include speakers representing cancer patients, caregivers, researchers, healthcare and support service providers, leaders, and advocates.
Opening and closing keynote speeches will be delivered by a panel of patients and our special guest (Darrell Fox, the younger brother of Terry Fox), respectively.
Topics include lived experiences of patients and caregivers from various backgrounds, clinical trials in cancer, precision medicine in cancer, clinical and support services offered to cancer patients in Atlantic Canada, and role of advocacy in changing things for the better.
Select speeches will be delivered in French.
Register here: https://mun.jotform.com/250295627862061
Thank you – Organizing Committee: Jennifer Coish, Beverly Pausche, Georgia Skardasi, Sevtap Savas.
***For updates, info, and conference schedule, please continue to visit this website.

QR code for the registration link:

Tentative schedule (Feb 14, 2025) – subject to change
Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) is excited to announce the date for their public, virtual conference titled “Cancer is Personal”: Humanizing Precision Medicine in Atlantic Canada!!
Please save the date, March 15 2025!
Further information, including registration, speakers, and schedule will be announced in early 2025.
Please join us in this public conference designed for Atlantic Canadians by Atlantic Canadians.

I was delighted to speak about the ACC PAC, its goals and its work since its inception in January 2024 as part of the Applied Research In Cancer Control (ARCC) Conference, 2024 in Ottawa (May 16-17, 2024).
I met with great folks (researchers and patient advocates), listened to awesome studies and presentations by others, and had the privilege to talk about Marathon of Hope Cancer Centre Networks, Atlantic Cancer Consortium, and our Patient Advisory Committee.
We will continue to disseminate ACC PAC’s work to in both public and scholarly spaces, media, journals, conferences, and events.
Best,
Sevtap Savas, PhD Lead ACC PAC, Ottawa May 17, 2024
PS: Do not forget to check our Gazette and Telegram articles that report back to Atlantic Canadians.
