Strength in Community

Showcasing Public Engagement in Research

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  • Strength in Community – About Us
  • Public Interest Group on Cancer Research
  • Public Conference on Cancer – 2022
  • Blog by Dr. Savas
  • Public Conference on Genetics (2020)
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  • ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)

Tag: Newfoundland and Labrador

Episode 30 – Health care and cancer care for transgender and gender diverse individuals

Quinn Jesso and Sydney Knapman from Trans Support NL had a chat with Sevtap Savas on healthcare and cancer care for individualstransgender and gender-diverse, what gender affirming care looks like, what barriers exist in accessing healthcare and cancer care, and more.

Take a look 🙂

Podcast: https://open.spotify.com/episode/5QxNZFHbC3iDftWGsQ1Uov?si=Cm8vEYJ_Q0aU78J1AHeN8A

For their gender affirming care toolkit, please visit: https://tsnl.org/nl-gender-affirming-care-toolkit/

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August 17, 2026August 17, 2026 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Cancer Care, cancer care for transgender, gender-affirming care, gender-diverse, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's, Trans Support NL, transgender Leave a comment

Episode 29 – Patient voice in cancer

We are pleased to share this podcast with Stephanie Howlett, Judy D. Whitty, Tracy Slaney, and Sevtap Savas on Patient Voice in Cancer: what it means? how it looks? what can be done to further progress it?

Take a look 🙂

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August 15, 2026August 15, 2026 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Atlantic Canada, Canada, cancer, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Patient voice, Podcast, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

What have we learnt by working with public partners?

Hey folks,

I made two presentations as part of the Canadian Association of Psychosocial Oncology (CAPO) annual conference – one about the Public Interest Group on Cancer Research and the other about the Atlantic Cancer Consortium Patient Advisory Committee.

We learnt and grew together – both of these presentations paint a picture of different experiences and learning – take a look

Sevtap Savas, PhD. St. John’s, June 15, 2026

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June 15, 2026June 15, 2026 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee), Blog, Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, patient partnerships, Public Engagement, Public Interest Group on Cancer Research, Public Outreach Leave a comment

proud moments….

This past week was full of joy, pride, and appreciation 🙂

I have received two awards for our work done by my team and patient partners 🙂 What an amazing feeling.

First one was the Innovation Award by the Canadian Association of Psychosocial Oncology (CAPO): https://www.capo.ca/CAPO-Innovation-Award

The second one was the Seniors of Distinction award by the Department of Seniors, Government of Newfoundland and Labrador – another amazing recognition 🙂 https://www.gov.nl.ca/releases/2026/exec/0611n03/

Folks, I am happy that our efforts are making an impact. Together, we can do so much more.

Better days ahead.

Sevtap Savas, PhD. St. John’s, June 15, 2026

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June 15, 2026June 15, 2026 by sevtapsavas Categories: Blog, Public Interest Group on Cancer ResearchTags: Advocacy, cancer, community contributions, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, Recognitions, St. John's Leave a comment

We are celebrating our 5th year together!

The Public Interest Group on Cancer is proud to celebrate its 5th anniversary.

We have been active since May 2021, and undersigned impact public engagement and advocacy activities – take a look:

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May 4, 2026May 4, 2026 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

The Public Interest Group on Cancer invites interested folks to their study!

under construction

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March 18, 2026March 18, 2026 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, Public Engagement, Public Interest Group on Cancer Research, St. John's Leave a comment

The 2nd scholarly manuscript by the ACC PAC is now published

We are pleased to note that we – the Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) – have just published our 2nd scholarly paper!! đź’“

In this paper, we describe our experience with organizing a Public Conference on Precision Medicine (March 15, 2025) for Atlantic Canadians, self-reflections, feedback received and lessons learnt for future public partnerships and conferences

Take a look!!

What an impressive track-record – The ACC PAC was formed in Jan 2024, and this is our second manuscript peer-reviewed and published freely available to global audience

Congrats everyone – hope more to come!

https://journals.sagepub.com/doi/10.1177/21501319261420572

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February 19, 2026February 19, 2026 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee), BlogTags: Advocacy, advocate, Atlantic Cancer Consortium Patient Advisory Committee, Canada, cancer, Marathon of Hope, Marathon of Hope Cancer Centres Network, Memorial University of Newfoundland and Labrador, New Brunswick, Newfoundland and Labrador, Nova Scotia, Patient advisors, PEI, Public Engagement Leave a comment

We have a logo!

Dear folks,

We are pleased to share our group’s logo with you!

We loved how it shows togetherness and feeling of community that we have been experiencing and seeing around us.

Happy New Year!

©Public Interest Group on Cancer.

PDF7 with copyright signDownload

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December 29, 2025December 29, 2025 by sevtapsavas Categories: Blog, Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

ACC PAC webinars have started

The Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) is proud to note that it has started its webinar series.

In the first two webinars, the committee focused on the research done by the Atlantic Cancer Consortium.

The first webinar was delivered by Dr. Alexi Surette in French and the second one was delivered in English by Dr. Sherri Christian.

You can access these presentations here:

Better days ahead.

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December 6, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Advocacy, Biobanking, cancer, Marathon of Hope, Marathon of Hope Cancer Centres Network, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, Precision Medicine, Public Engagement, Public Outreach Leave a comment

Exceptional Leadership in Patient Involvement in Cancer Research Award

I am excited to note that I will be receiving the Exceptional Leadership in Patient Involvement in Cancer Research Award by the Canadian Cancer Research Alliance (CCRA) in Nov 2025.

Congratulations to all awardees – what a great cohort of folks who are dedicated to make a difference at the cancer front!

I am so happy to bring this Award to Newfoundland and Labrador, and Atlantic Canada.

This prestigious and national award goes to you folks: Community in #NewfoundlandAndLabrador and in #AtlanticCanada, my collaborator colleagues and assistants, and our funders who transformed me into a public communicator and engager.

Over the last 6 years, together we have been working very hard to make a difference in the lives of people, families, and communities affected by cancer.

The Public Interest Group on Cancer Research has been particularly strong voice in Newfoundland and Labrador. It was formed and sustained by funding provided by the Office of Public Engagement in St. John’s, Memorial University of Newfoundland. Sadly, this wonderful unit, its excellent staff, and its funding do not exist anymore. This is just one example of how the budget cuts impact the community in NL – no one wins here.

The Atlantic Cancer Consortium Patient Advisory Committee is another successful partnership albeit being a young one (formed less than 2 years ago). I thank our funders/MOHCCN for making our work and committee a possibility.

NLSUPPORT has always been there to give us a hand – I cannot thank its wonderful staff.

Among all the units I am associated with at Memorial University, it has been my clinical colleagues at the Discipline of Oncology, who have fully supported and understood what I have been trying to do in my engagement work. Special thanks go to them.

I thank Quality of Care NL for nominating me for this award, and public partners, leaders, and colleagues supporting my nomination.

I always question where my heart and mind are. Nowadays they are with my family. My mom, Nimet Altunbas, died of cancer four  years ago. My sister, Mehtap Savas, is a long term survivor of cancer. I would die for them.

I work very hard to make a difference in the lives of people affected (or will be affected) by cancer – I have no regret for working hard, failing, getting up, getting burnt out, and succeeding along the way. My only regret is that my family has not benefited and will not benefit from my hard work. From my young age on, they supported my ideals and not even once complained about me being away from them (since age 11). I proudly note that my sister Mehtap is my biggest supporter, as she understands the gap we have been addressing together with public partners in the lives of people affected by cancer.

Last, I am Turkish and I am an immigrant to Canada. This award is a testament to immigrants’ abilities and contributions to the society and academia in Canada. If there are other immigrant folks out there who would like to start public and patient engagement, please just go ahead – future is brighter.

My commitment to make things better for the next person and family affected by cancer is continuous. Please join me in supporting them in any way you can.

With gratitude

Sevtap Savas, PhD. Oct 21, 2025 St. John’s

————————————————–

In case you are wondering what we have been doing with public partners, here is a short summary

  • We have been spending a lot of time creating ideas, figuring out, conversing, and overcoming hurdles to do so
  • We have been reaching out to the public, engage with them, and share knowledge with them
  • We have been designing studies and public engagement activities to benefit the public
  • We have been advising researchers and other stakeholders
  • We have been organizing public events and conferences
  • We have been publishing all learnings at both the academic and public levels, so that anybody could benefit from our experiences
  • We have been learning how to best work together
  • We continuously progressed and evolved – we even started a public podcast on cancer with currently 28 episodes!

You can read my full award interview here: https://www.ccra-acrc.ca/wp-content/uploads/2025/10/2025_Interview_SSavas_EN.pdf and listen to a snap shot of it in the YouTube video below.

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October 21, 2025October 21, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee), Blog, Public Interest Group on Cancer ResearchTags: Advocacy, Atlantic Canada, Canada, cancer, gratitude, Leadership award, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, regrets, St. John's Leave a comment

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