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Tag: Patient Advisory Committee

Advocating to House of Assembly_Newfoundland and Labrador

Advocacy is something we naturally do when we partner with public members.

Pleased to advocate on behalf of people affected by cancer in Atlantic Canada by emailing the following to all 40 members of the House of Assembly in Newfoundland and Labrador:

————–

Dear Members of House of Assembly – Newfoundland and Labrador,

Cancer touches everyone.

When it strikes us, or someone close, we know that they need support, and we all want to help. 

As an elected representative, your role is crucial, and your actions can save lives. 

The Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) is part of the national Marathon of Hope Cancer Centres Network. Our membership includes 15 members from Atlantic Canada, 11 of whom are public members affected by cancer. I proudly lead this group.

Together, ACC PAC has identified priorities to improve access to care, and has published an academic paper with their results – you can access it here free of charge: https://link.springer.com/article/10.1007/s44250-025-00201-1 

We invite you to take a look at the priorities identified in our paper to explore ways to address them in our region, and reach out to us with suggestions about how you may be able to fast-track improvements. 

We are happy to meet in person or virtually.

Thank you and kind regards,

Sevtap

Thanking Bev P. for her valuable help with the content.

Sevtap Savas, PhD, ACC PAC lead.

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April 14, 2025April 14, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee), BlogTags: Advocacy, Atlantic Cancer Consortium, cancer, House of Assembly, Newfoundland and Labrador, Patient Advisory Committee, Public Engagement, Public Outreach, St. John's Leave a comment

Year End Summary by ACC PAC (April 2024)

We are pleased to share our Year End Summary report 🙂

ACC PAC includes an enthusiastic team of public members from across Atlantic Canadian provinces. Please take a look at our report below.

Best,

Sevtap Savas, PhD

Lead, ACC PAC

April 3, 2024

ACC-PAC_Year-End-Summary-April-2024_website-1Download

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April 3, 2024April 4, 2024 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Atlantic Canada, Atlantic Cancer Consortium, Canada, cancer, Marathon of Hope Cancer Centres Network, Patient Advisory Committee, Public Engagement, Public Outreach 2 Comments

We started the process to create the Patient Advisory Committee of the Atlantic Cancer Consortium (ACC PAC)!

We are pleased to let you know that we have started the process to formally start the Patient Advisory Committee of Atlantic Cancer Consortium!

Atlantic Cancer Consortium is a part of the Marathon of Hope Cancer Centre Networks led by the Terry Fox Research Institute. This consortium consists of a team of over 70 scientists, clinicians, staff, and trainees in Atlantic Canadian provinces.

The primary aim of the Cancer Centres Network is to advance the way to cancer cure via research (particularly focusing on Precision Medicine), collaboration, and training the next generation cancer researchers.

ACC PAC will be led by Sevtap Savas, PhD. Sevtap is a cancer scientist, patient advocate, and professor at Memorial University of Newfoundland and Labrador, St. John’s, NL.

Stay tuned!

ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)

Farewell message by the ACC PAC

After 2 years and 3 months of working together, sadly the ACC PAC (Atlantic Cancer Consortium Patient Advisory Committee) is coming to an end due to lack of funding. During this time frame, our committee worked tirelessly to connect patient stories, scientific and medical knowledge, and priorities with the general public, scientists, clinicians and funders.…

by sevtapsavas March 21, 2026April 10, 2026
ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)

The 2nd scholarly manuscript by the ACC PAC is now published

We are pleased to note that we – the Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) – have just published our 2nd scholarly paper!! 💓 In this paper, we describe our experience with organizing a Public Conference on Precision Medicine (March 15, 2025) for Atlantic Canadians, self-reflections, feedback received and lessons learnt for future…

by sevtapsavas February 19, 2026February 19, 2026
ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)

ACC PAC webinars have started

The Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) is proud to note that it has started its webinar series. In the first two webinars, the committee focused on the research done by the Atlantic Cancer Consortium. The first webinar was delivered by Dr. Alexi Surette in French and the second one was delivered in…

by sevtapsavas December 6, 2025

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November 18, 2023November 18, 2023 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: ACC PAC, Atlantic Canada, Atlantic Cancer Consortium, Atlantic cancer research, Canadian cancer research, cancer, Marathon of Hope Cancer Centres Network, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, Patient advisors, Patient Advisory Committee, patient partners, Precision Medicine, Public Engagement, Public Outreach, Terry Fox Research Institute Leave a comment
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