Strength in Community

Showcasing Public Engagement in Research

Skip to content
  • Strength in Community – About Us
  • Public Interest Group on Cancer Research
  • Public Conference on Cancer – 2022
  • Blog by Dr. Savas
  • Public Conference on Genetics (2020)
  • Advocacy in the News
  • Community Forum
  • Resources
  • Acknowledgement
  • Contact
  • ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)

Tag: Marathon of Hope

The 2nd scholarly manuscript by the ACC PAC is now published

We are pleased to note that we – the Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) – have just published our 2nd scholarly paper!! 💓

In this paper, we describe our experience with organizing a Public Conference on Precision Medicine (March 15, 2025) for Atlantic Canadians, self-reflections, feedback received and lessons learnt for future public partnerships and conferences

Take a look!!

What an impressive track-record – The ACC PAC was formed in Jan 2024, and this is our second manuscript peer-reviewed and published freely available to global audience

Congrats everyone – hope more to come!

https://journals.sagepub.com/doi/10.1177/21501319261420572

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • More
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Email a link to a friend (Opens in new window) Email

Like this:

Like Loading...
February 19, 2026February 19, 2026 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee), BlogTags: Advocacy, advocate, Atlantic Cancer Consortium Patient Advisory Committee, Canada, cancer, Marathon of Hope, Marathon of Hope Cancer Centres Network, Memorial University of Newfoundland and Labrador, New Brunswick, Newfoundland and Labrador, Nova Scotia, Patient advisors, PEI, Public Engagement Leave a comment

ACC PAC webinars have started

The Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) is proud to note that it has started its webinar series.

In the first two webinars, the committee focused on the research done by the Atlantic Cancer Consortium.

The first webinar was delivered by Dr. Alexi Surette in French and the second one was delivered in English by Dr. Sherri Christian.

You can access these presentations here:

Better days ahead.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • More
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Email a link to a friend (Opens in new window) Email

Like this:

Like Loading...
December 6, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Advocacy, Biobanking, cancer, Marathon of Hope, Marathon of Hope Cancer Centres Network, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, Precision Medicine, Public Engagement, Public Outreach Leave a comment

Year end report to the community

Dear folks,

We are pleased to report back to the community in Atlantic Canada about our impactful and productive work.

You can find a recap published in Telegram here: https://www.saltwire.com/newfoundland-labrador/letter-atlantic-cancer-consortium-patient-advisory-committee-reflects-on-its-successful-year

A more detailed report is posted below.

We thank you for your support to our activities.

On behalf of ACC PAC, Sevtap Savas, PhD. St. John’s

ACC PAC_Year End Summary – April 2025_websiteDownload

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • More
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Email a link to a friend (Opens in new window) Email

Like this:

Like Loading...
April 10, 2025April 10, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Advocacy, Atlantic Canada, Atlantic Cancer Consortium, Canada, cancer, Marathon of Hope, Public Engagement, Public Outreach Leave a comment

Conference recordings_Cancer is Personal: Humanizing Precision Medicine in Atlantic Canada

We are pleased to share the recorded talks delivered on March 15, 2025, as part of the public conference named Cancer is Personal: Humanizing Precision Medicine in Atlantic Canada!

We thank all speakers for making their talks public and tech staff for making this possible.

On behalf of ACC PAC, Sevtap Savas, PhD.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • More
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Email a link to a friend (Opens in new window) Email

Like this:

Like Loading...
April 2, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Atlantic Canada, Atlantic Cancer Consortium, Canada, cancer, Marathon of Hope, Marathon of Hope Cancer Centres Network, Memorial University of Newfoundland and Labrador, New Brunswick, Newfoundland and Labrador, Nova Scotia, patient navigator program, patient stories, PEI, Precision Medicine, Public Conference, Public Engagement, Public Outreach, Terry Fox Leave a comment

New paper by the Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC)

We are pleased to share our scholarly paper published in Discover Health Systems journal this week!

In this paper, we describe the formation of our team (ACC PAC) and the patient and family priorities its members identified regarding cancer and precision medicine in Atlantic Canada.

The ACC PAC identified priorities in two categories:

  1. Addressing needs of everyone affected by cancer equitably, and the whole patient and family
  2. Increasing awareness, access, and affordability of precision medicines

You can freely access this manuscript here: https://link.springer.com/article/10.1007/s44250-025-00201-1?utm_source=rct_congratemailt&utm_medium=email&utm_campaign=oa_20250324&utm_content=10.1007/s44250-025-00201-1

Better days ahead

Sevtap Savas, PhD.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • More
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Email a link to a friend (Opens in new window) Email

Like this:

Like Loading...
March 26, 2025March 26, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Advocacy, Atlantic Canada, Atlantic Cancer Consortium Patient Advisory Committee, Canada, cancer, knowledge dissemination, Marathon of Hope, Priorities, Public Engagement, Public Outreach Leave a comment

Introducing Conference speakers (Cancer is Personal: Humanizing Precision Medicine in Atlantic Canada)

Special guest, Darrell Fox

————————————————————————————————————————-

Lianne Mantla-Look

————————————————————————————————————————-

Derrick Bishop

————————————————————————————————————————-

Dr. Cara MacInnis

————————————————————————————————————————-

Gilles LeBlanc

————————————————————————————————————————-

Jennifer Coish

————————————————————————————————————————-

Dr. Amanda Bolderston

————————————————————————————————————————-

Dr. Rodney Quellette

————————————————————————————————————————-

Dr. Angela Hyde

————————————————————————————————————————-

Dr. Ravi RamjeesinghMD, Ph.D

————————————————————————————————————————-

Kathleen Buckley

————————————————————————————————————————-

Chantal Boudreau

————————————————————————————————————————-

Michelle Barton

————————————————————————————————————————-

Marianne Arab

————————————————————————————————————————-

Nicole Cardoulis

—————————————————————————————————————————-

Olivier Savoie

—————————————————————————————————————————-

Dr. Sevtap Savas

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • More
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Email a link to a friend (Opens in new window) Email

Like this:

Like Loading...
February 18, 2025March 7, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Atlantic Canada, Canada, cancer, Marathon of Hope, Memorial University of Newfoundland and Labrador, New Brunswick, Newfoundland and Labrador, Nova Scotia, PEI, Precision Medicine, Public Conference, Public Engagement, Public Outreach Leave a comment

Presenting the ACC PAC in the ARCC 2024 Conference (May 17, 2024)

I was delighted to speak about the ACC PAC, its goals and its work since its inception in January 2024 as part of the Applied Research In Cancer Control (ARCC) Conference, 2024 in Ottawa (May 16-17, 2024).

I met with great folks (researchers and patient advocates), listened to awesome studies and presentations by others, and had the privilege to talk about Marathon of Hope Cancer Centre Networks, Atlantic Cancer Consortium, and our Patient Advisory Committee.

We will continue to disseminate ACC PAC’s work to in both public and scholarly spaces, media, journals, conferences, and events.

Best,

Sevtap Savas, PhD Lead ACC PAC, Ottawa May 17, 2024

PS: Do not forget to check our Gazette and Telegram articles that report back to Atlantic Canadians.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • More
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Email a link to a friend (Opens in new window) Email

Like this:

Like Loading...
May 17, 2024May 17, 2024 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Atlantic Canada, Atlantic Cancer Consortium Patient Advisory Committee, Canada, cancer, Conference, Marathon of Hope, NL, Public Engagement, Public Outreach Leave a comment
Powered by WordPress.com.
 

Loading Comments...
 

    %d