Do the cancers diagnosed in other family members mean something for you?
Possibly. Take a look.
Author: sevtapsavas
Study information – Social and workplace lived experiences of cancer patients in Newfoundland and Labrador
RECRUITMENT STARTED!!
Study Information
Study Title: Social and workplace lived experiences of cancer patients in Newfoundland and Labrador
Why do we want to conduct this research?
Cancer is a common disease affecting our population. Understanding experiences of individuals living with, through, or beyond cancer is important in order to inform social, workplace, and healthcare programs and policies.
What are our goals?
We aim to understand cancer patients’ experiences regarding their social and workplace interactions in Newfoundland and Labrador population.
We also would like to know whether these experiences differ between:
- individuals from different geographic regions of NL,
- individuals diagnosed with cancer at a young age (before 45 years of age), and
- individuals, who are members of the 2SLGBTQIA+ community.
How are we going to achieve our goals?
We will invite interested individuals to join for a group discussion over the phone or in a virtual meeting. Meetings will be recorded so that we can transcribe the discussions. These discussions will then be analyzed to distill key points.
We will repeat these steps for each patient group that we describe above. We will then compare the key points identified from each group.
We will also ask you to provide us basic information about yourself, your economic status, employment, and disease (cancer).
Why participate in this study?
Our previous studies and interactions with cancer-affected individuals indicated that there may be changes in social and workplace experiences following a cancer diagnosis. By conducting this study, we hope that we will get a better understanding of these experiences.
Understanding cancer patients’ experiences about their social and workplace interactions in turn can help with future experiences and practices. For example, it can:
1) inform public education programs and campaigns
2) improve life experiences of cancer patients, their quality of life and social outcomes
3) implement better healthcare and social support services as well as workplace policies
4) move towards a more inclusive society
These changes then can positively impact the life and workplace experiences of future cancer patients in our province (and possibly beyond).
Who can participate in this study?
Individuals who:
-reside in Newfoundland and Labrador;
-are at least 18 years of age;
-have had a cancer diagnosed in the last 5 years (at the time of recruitment);
-have worked following their diagnoses;
-can use and have access to phone or internet and computer
are eligible to participate.
Additionally: we are looking for individuals diagnosed with cancer in each of the Regional Health Authority Regions (Eastern, Western, Central, Labrador and Grenfell),
or those who are diagnosed with cancer before the age of 45 years of age,
or those who identify as members of the 2SLGBTQIA+ community
How can you participate?
Please contact the research team.
Ms. Krista King is the graduate student, who will be conducting the focus group discussions and other procedures. Krista will be happy to talk to you about this study and answer any of your questions. Krista can be reached at 709-864-4618 or krista.king@mun.ca.
Dr. Sevtap Savas is the scientist leading this project. She can be reached at 709-864 6507 or savas@mun.ca.
Health Research Ethics Board
If you have any questions regarding your rights as a participant, you can contact the Health Ethics Research Board in St. John’s at 709-777-6974 or info@hrea.ca.
THANK YOU FOR YOUR INTEREST.
This Is Our Conversation_Potential links between cancer and age, social determinants of health, and access to information and healthcare services
Why do we have a slightly higher risk of developing and dying from cancer, compared to other provinces?
(I think somewhere I forgot to say “lack of”. Lack of healthy food and healthy environments are linked to adverse life events)
Talk to you soon!
This Is Our Conversation Series_Reflections as a cancer scientist and advocate during the MUN strike-2023
Protected: picket line video
This Is Our Conversation Series_Cancer incidence and mortality numbers in Newfoundland and Labrador
These numbers hit the home hard – every year in Newfoundland and Labrador we do have a number of individuals diagnosed with cancer and die because of cancer. Take a look at today’s episode:
This Is Our Conversation Series_What is the chance of dying from cancer in Canada?
One post
One radio interview
One media piece
One piece of knowledge
One discussion
One public event
One social media post at a time
We will help transform the word #cancer from the #ElephantInTheRoom to a public knowledge
Knowledge can be empowering. Join the conversation and help spread the word.
Sevtap Savas, PhD. Jan 21,2023. St. John’s.
This is Our Conversation Series_How common is cancer in Canada?
Take a look at this short video and join our conversation – you can reach Sevtap Savas, PhD. at anytime if you have any comments.
This Is Our Conversation Series_Introduction
Introduction to “This is our conversation” series by Sevtap Savas, PhD. This series aim to exchange knowledge on cancer.
if you have any comments or questions, you can contact her at savas[at]mun.ca or at 709 864-6507
Disclaimer: Information is shared for the purposes of education and sharing information/perspectives only. The information posted should not be interpreted as medical advice. All health information should be discussed with your health care provider.
MUN Research Week webinar on Public Engagement & Research
Grateful for Office of Public Engagement for organizing this webinar and making the recording publicly available!
I truly enjoyed being a part of this event, listening to my colleagues, and addressing participant questions.
Take a look!
Till next time,
Sevtap Savas, PhD, St. John’s, Newfoundland and Labrador
