In this podcast episode, Janine and Sevtap talked with Stephanie Budgell, a young person with a history of cancer and a long period of advocacy.
This is one of the coziest conversation we have ever had 🙂
Take a look:
Tag: Public Engagement
Presenting the ACC PAC in the ARCC 2024 Conference (May 17, 2024)
I was delighted to speak about the ACC PAC, its goals and its work since its inception in January 2024 as part of the Applied Research In Cancer Control (ARCC) Conference, 2024 in Ottawa (May 16-17, 2024).
I met with great folks (researchers and patient advocates), listened to awesome studies and presentations by others, and had the privilege to talk about Marathon of Hope Cancer Centre Networks, Atlantic Cancer Consortium, and our Patient Advisory Committee.
We will continue to disseminate ACC PAC’s work to in both public and scholarly spaces, media, journals, conferences, and events.
Best,
Sevtap Savas, PhD Lead ACC PAC, Ottawa May 17, 2024
PS: Do not forget to check our Gazette and Telegram articles that report back to Atlantic Canadians.
Promotion Video – Public Event on Transgender Individuals and Cancer
It was so much fun to shoot this promotional video on our upcoming public and virtual event “A Documentary Screening and Panel Discussion Event on Transgender Individuals and Cancer“
May 16th, 2024
REGISTRATION: https://shorturl.at/gsuKY
We gratefully acknowledge that this video is created by Shamila Yazdanpanah using Canva Pro. We are grateful for our funder (Office of Public Engagement at Memorial University) and our project partner, Quadrangle NL.
Reporting back to Community in Atlantic Canada through media: April -May 2024
We are excited to communicate our work and goals with the very people we aim to benefit – the residents of the Atlantic Canada (and beyond).
In addition to circulating or Year End Report, we also published two articles in local media about how we formed and why, and what have we accomplished in such a short time (we were created in January 2024!).
Please take a look at these articles
Here and here.
if you have any feedback or comment, we will be delighted to hear them. Please send your thoughts to savas{at}mun.ca or place them in the comment box below.
With our best wishes,
Sevtap Savas, PhD. Lead, ACC PAC May 8, 2024 St. John’s, NL
Episode 8 – “I had a tumor of the size of a tissue box” –Bonnie Morgan and Alana Walsh-Giovannini tell us about ovarian cancer and Belles with Balls
We are pleased to air our latest podcast today!
In this episode, we talked with Bonnie Morgan and Alana Walsh-Giovannini.
Together we talked about ovarian cancer, lived experience, messages of hope, the charity organization they have founded (Belles with Balls), and most importantly how a dedicated team of 8 women have raised more than half a million dollar to support ovarian cancer education and research in Newfoundland and Labrador!!
We thank every volunteer and donor who are working towards a better future for women.
Episode 7 – Do you get patient-centered cancer care? A cozy, hopeful, and inspirational chat with Dr. Maisam Najafizada
Our special guest today was Dr. Maisam Najafizada 😊
Dr. Najafizada is the interim Assistant Dean of Social Accountability and an assistant professor of Health Policy at the Faculty of Medicine, Memorial University.
In this episode:
- Dr. Najafizada and Sevtap chat about everything from what it means to have a patient-centered cancer care to the current state of healthcare in Canada, existing barriers and opportunities, and social accountability activities
- There is something exciting and useful information for everyone in this episode, from cancer care to science and health policy
Please listen to our great chat here:
Episode 6 – A story of childhood cancers, resilience, and using lived experience to support others– Alan Winnett from Candlelighters NL shares
Our kids also get cancer – let’s not forget them when we talk or think about how to control and win over cancer.
In Canada, every year around 1,000 kids will be diagnosed with cancer. Sadly, we will also lose around 200 kids to cancer annually.
Pediatric cancers have impacts on the kids, their parents & siblings, friend, and extended family.
In this podcast, we talked with Alan Winnett, a parent of a child with a history of cancer and a board member for NL CandleLighters, a local charity and community support organization in NL focusing on pediatric cancers.
Check this podcast to learn the perspectives and experience by Alan and the many support programs available to families affected by pediatric cancers through the NL CandleLighters.
Registration open – DOCUMENTARY SCREENING AND PANEL DISCUSSION EVENT FOCUSING ON TRANSGENDER INDIVIDUALS WITH CANCER
We are pleased to say that the registration for the “DOCUMENTARY SCREENING AND PANEL DISCUSSION EVENT FOCUSING ON TRANSGENDER INDIVIDUALS WITH CANCER” is now open!
Registration is free – please register here: https://www.med.mun.ca/oped/programs/4742
We cannot wait to screen the documentary called Trans Dudes with Lady Cancer and have discussions with a panel of transgender folks with a lived cancer experience, healthcare providers, and advocates.
Come join us.
This event is organized by The Public Interest Group on Cancer Research and Quadrangle NL, a local 2SLGBTQIA+ organization.
We gratefully acknowledge Office of Public Engagement for funding and NLSUPPORT for supporting this event.
Podcast Episode 5 –“Prepare to die, but plan to live”: An impactful chat with Geoff Eaton about his lived experience, young adult cancers, and Young Adult Cancer Canada (YACC)
Our special guests today is Geoff Eaton, the Director of Young Adult Cancer Canada (YACC).
In this episode:
- We talk about Geoff’s experience as a young person diagnosed with cancer, how this shaped his leadership and community work, activities and support provided by YACC to young adults diagnosed with cancer in Canada, and more.
- Additionally, at the end Sevtap gives brief info about young adult cancers in Canada – what are they? How many folks are affected? What are the main priorities in addressing young adult cancers?
Take a look and hope you will enjoy this episode as much as Geoff and Sevtap have.
Year End Summary by ACC PAC (April 2024)
We are pleased to share our Year End Summary report 🙂
ACC PAC includes an enthusiastic team of public members from across Atlantic Canadian provinces. Please take a look at our report below.
Best,
Sevtap Savas, PhD
Lead, ACC PAC
April 3, 2024