Public Outreach – Page 5 – Strength in Community

YOU ARE INVITED: Workplace experiences and rights of cancer patients in Newfoundland and Labrador

We are pleased to announce that registration for the following event is now open!

It is a free, public event.

All is welcome.

Registration is required to participate: https://www.med.mun.ca/oped/programs/4779. Please create an account first if you do not have it.

Both in-person and virtual participation options are available

Location: Virtual (link to be sent upon registration) OR Faculty of Medicine, New Medical Education Building (also called “glass building”), 1st floor, Room 1M102

Event organized by Krista King at Faculty of Medicine, in collaboration with the NL Human Rights Commission.

Free Parking: Lot 30 (outside of medical school) and parking garage (level 2) from 9 am-2 PM

Speakers include those with lived experience, researchers, and the executive director of the NL Human Right Commission. Please see the current schedule below.

See you there!

October 17, 2024October 17, 2024 by sevtapsavas Categories: BlogTags: Canada, cancer, Human Rights, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Public Engagement, Public Event, Public Outreach, Registration, St. John's, Wokplace rights, Workplace experiences Leave a comment

New scholarly publication – Toward a public outreach and community engagement strategy on cancer in Newfoundland and Labrador: An initial road map and recommendations

We are excited to share with you our new scholarly (peer reviewed) article just published in Journal of Psychosocial Oncology Research and Practice!

In this manuscript, we worked on understanding public engagement needs and opportunities when it comes to cancer in Newfoundland and Labrador. We also developed recommendations for both our group and external stakeholders.

For example, we collated information about which topics on cancer are relevant, or an interest to public members. We developed plans to diversify our collaborations and improve the public outreach activities in the province. We followed some of these plans as well.

This project was co-led by a public member, John King and a scientist, Sevtap Savas.

We invite you to take a look – it is free to read: https://journals.lww.com/jporp/fulltext/2024/10000/toward_a_public_outreach_and_community_engagement.5.aspx

We thank our Group members, public members who shared their thoughts with us, our funder (Office of Public Engagement) and supporters (NLSUPPORT) at Memorial University of Newfoundland.

On behalf of the Public Interest Group on Cancer Research, Sevtap Savas, St. John’s.

Image created by AI.

October 14, 2024October 14, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, Cancer topics, Community Engagement Strategy, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, public partnership, Roadmap, scholarly publication, St. John's Leave a comment

Special Episodes 15 and 16 – Advocacy, and issues and recent changes in workplace legislations when it comes to cancer

We were pleased to have two special podcast episodes in September and October with Tracy Slaney and Heather Mulligan.

Tracy Slaney is an amazing advocate and caregiver in Newfoundland and Labrador. Heather Mulligan is from Canadian Cancer Society Advocacy unit in Atlantic Canada.

We have had cozy and very informative chats about what it means to be an advocate, and how organizations like Canadian Cancer Society are helping with advocating/lobbying the governments for change. One recent example is extension of unpaid sick leave and job protection in Nova Scotia.

We hope to see similar changes in other Atlantic Canada provinces, including Newfoundland and Labrador.

You can find our special podcast episodes here:

Episode 15 (special episode) – A heartwarming story of cancer advocacy and caregiving by Tracy Slaney:

https://podcasters.spotify.com/pod/show/sevtap-savas/episodes/Episode-15-special-episode–A-heartwarming-story-of-cancer-advocacy-and-caregiving-by-Tracy-Slaney-e2oe1mb

Episode 16 (special episode) – Role of advocacy in changing sick leave legislations in Atlantic Canada:

https://podcasters.spotify.com/pod/show/sevtap-savas/episodes/Episode-16-special-episode–Role-of-advocacy-in-changing-sick-leave-legislations-in-Atlantic-Canada-e2ovov0

Thank you for listening and enjoy!

October 5, 2024October 5, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, Canadian Cancer Society, cancer, caregivers, Job protection, Lobbying, Newfoundland and Labrador, NL, Nova Scotia, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, Sick leaves, St. John's Leave a comment

Episode 14 – “You are not alone”. Mike Kehoe shares his messages of hope for all folks out there

In this last episode of our Season I, we talked with Mike Kehoe, a community member and person with a lived experience of prostate cancer. Mike shared not only his experience with us, but also his positive and empowering messages.

We are grateful that he took his time to converse with us.

Take a look:

We hope to be back with Season II next year, pending funding. We really enjoyed this experience, having wonderful guests and co-hosts, and learning from each other. Hope you will find time to listen to our podcast and perhaps be a guest in one of them in the future.

July 5, 2024July 5, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, Lived Experience, Memorial University of Newfoundland and Labrador, messages of hope, Newfoundland and Labrador, NL, prostate cancer, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Episode 13 – “I have led people to the promised land, but I could not enter the promised land. In memory of Dr. Robin McGee”

Our condolences to Robin’s family, friends, and the cancer community in Canada and beyond. Robin passed away from colorectal cancer in June 2024 after 14 years living with it . She was a fierce advocate and change-maker.

In this episode we talked with Robin and Hope Gillis about cancer, advocacy and coaching. It is one of a kind episode and hearing Robin speaks makes us even more determined to keep going. We have gigantic shoes to fill.

July 3, 2024July 3, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, cancer coaching, cancer lived experience, change-making, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Podcast, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, Robin McGee, St. John's Leave a comment

Episode 12 – Indigenous Patient Navigator Program in Newfoundland and Labrador – Ashley Dicker shares important knowledge about this impactful healthcare service

We are very excited to air this informative and fascinating podcast with Ashley Dicker on Indigenous Patient Navigator Program available in Newfoundland and Labrador.

This program is designed to support Indigenous persons traveling for medical care in the province. Six Indigenous Patient Navigators in the province provide all bunch of services and support, making sure the Indigenous patients will be cared best and will feel at home while they are away from home.

Thanking Ashley for this amazing session.

June 17, 2024June 17, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, FirstLight, Indigenous Patient Navigator Program, Indigenous Peoples, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, NL Health Services, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Episode 11 – Push For Your Tush! Listen to Tracy how her family is living with cancer but not ruled by it

This is one of the coziest and most fun chat we have had folks – take a look at it 🙂

In this episode, Tracy and myself (Sevtap) chat about colon cancer, lived experience as a caregiver, advocacy, rising funds and rising awareness about screening tests, and the Push For Your Tush fundraisings event organized by Tracy and Colon Cancer Canada in three cities in Newfoundland and Labrador in June and July.

These are community events that aim to bring folks and families together. You can walk with them, say hi, or make a donation to support their causes.

Push For Your Tush St. John’s: https://ccc.akaraisin.com/ui/pushforyourtush2024/g/newfoundland

Date: July 5th, 2024

Location: Petten Building, Strawberry Marsh Road

Push For Your Tush Southern Harbour: https://ccc.akaraisin.com/ui/pushforyourtush2024/g/southernharb

Date: June 20, 2024

Location: Laurentian Grounds

Push For Your Tush St. Lawrence: https://ccc.akaraisin.com/ui/pushforyourtush2024/g/stlawrence

Date: June 13th, 2024

Location: Lacey Allen Memorial Playground

Come join these dedicated advocates!

June 4, 2024June 4, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Cancer Screening Test, Caregiver, Caregiving, Colon Cancer, Colon Cancer Canada, colon cancer screening, FIT test, FundRaising, Lived Experience, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, Push for Your Tush, Rising awareness about cancer, St. John's Leave a comment

Episode 10 – At the intersection of being trans and having gendered cancer – PART II: Interview with James Moriarty and Dr. Joannie Neveu

In this episode, we continued our conversation with James Moriarty about his experiences of being a trans man with a history of cancer in an organ associated with female sex assigned at birth (you can find PART I here).

Dr. Neveu, who cares for a few trans persons with cancer in Newfoundland and Labrador, provides unique insights into how her cancer care practice looks like.

There is a lot to learn – please take a look at our latest podcast:

May 24, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: being trans and having cancer, Canada, cancer, Cancer Care, gendered cancers, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's, trans individuals, Transgender health Leave a comment

Episode 9 – Those with lived experience are the best teachers and speakers: Listen to our chat with Stephanie Budgell

In this podcast episode, Janine and Sevtap talked with Stephanie Budgell, a young person with a history of cancer and a long period of advocacy.

This is one of the coziest conversation we have ever had 🙂

Take a look:

https://podcasters.spotify.com/pod/show/sevtap-savas/episodes/Episode-9–Those-with-lived-experience-are-the-best-teachers-and-speakers-Listen-to-our-chat-with-Stephanie-Budgell-e2j892l

May 24, 2024May 24, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Lived expoerience, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach Leave a comment

Presenting the ACC PAC in the ARCC 2024 Conference (May 17, 2024)

I was delighted to speak about the ACC PAC, its goals and its work since its inception in January 2024 as part of the Applied Research In Cancer Control (ARCC) Conference, 2024 in Ottawa (May 16-17, 2024).

I met with great folks (researchers and patient advocates), listened to awesome studies and presentations by others, and had the privilege to talk about Marathon of Hope Cancer Centre Networks, Atlantic Cancer Consortium, and our Patient Advisory Committee.

We will continue to disseminate ACC PAC’s work to in both public and scholarly spaces, media, journals, conferences, and events.

Best,

Sevtap Savas, PhD Lead ACC PAC, Ottawa May 17, 2024

PS: Do not forget to check our Gazette and Telegram articles that report back to Atlantic Canadians.

May 17, 2024May 17, 2024 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Atlantic Canada, Atlantic Cancer Consortium Patient Advisory Committee, Canada, cancer, Conference, Marathon of Hope, NL, Public Engagement, Public Outreach Leave a comment

Tag: Public Outreach

YOU ARE INVITED: Workplace experiences and rights of cancer patients in Newfoundland and Labrador

Like this:

New scholarly publication – Toward a public outreach and community engagement strategy on cancer in Newfoundland and Labrador: An initial road map and recommendations

Like this:

Special Episodes 15 and 16 – Advocacy, and issues and recent changes in workplace legislations when it comes to cancer

Like this:

Episode 14 – “You are not alone”. Mike Kehoe shares his messages of hope for all folks out there

Like this:

Episode 13 – “I have led people to the promised land, but I could not enter the promised land. In memory of Dr. Robin McGee”

Like this:

Episode 12 – Indigenous Patient Navigator Program in Newfoundland and Labrador – Ashley Dicker shares important knowledge about this impactful healthcare service

Like this:

Episode 11 – Push For Your Tush! Listen to Tracy how her family is living with cancer but not ruled by it

Like this:

Episode 10 – At the intersection of being trans and having gendered cancer – PART II: Interview with James Moriarty and Dr. Joannie Neveu

Like this:

Episode 9 – Those with lived experience are the best teachers and speakers: Listen to our chat with Stephanie Budgell

Like this:

Presenting the ACC PAC in the ARCC 2024 Conference (May 17, 2024)

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