Strength in Community

Showcasing Public Engagement in Research

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Tag: Public Engagement

New publication by our Group!

We are excited to share our latest publication about our activities as the Public Interest Group on Cancer Research! 🙂

We invite you to take a look at our publication – see the link below.

https://www.mdpi.com/1718-7729/32/10/579

Our work since 2021 has shown that there is a need to reach out to public in our province. Specifically, there is a need to inform and empower folks about cancer.

In the last two years, we have been creating a guest blog and podcast series on cancer, lived experience, cancer care and research, and advocacy.

  • During this time frame, we have published 13 blog posts on our website and 28 podcast episodes on Spotify.
  • Each of these pieces includes genuine, cozy, and informative conversations and perspectives by 36 guests. We enjoyed working with them, listening to their stories, and exchanging perspectives – all to benefit the population-at-large in NL and beyond.
  • While 2 out of 3 guests are from NL, we also had guest from other provinces (NS, PEI, QC, BC, NWT) and other countries (England, Turkiye) – these guests helped us to see the wider view on the cancer front. We thank all of them for sharing their knowledge and wisdom with us.
  • Our podcast hosts included our group members – Jason Wiseman, Janine Taylor-Cutting, Tracy Slaney, and Sevtap Savas. Our coordinator Kayla Crichton helped edit all podcasts episodes, write their summaries, and hosted one episode. We had lots of fun 😊
  • We have done something with this project that was not done before in our province. And we are very proud of this.
  • Support by the Office of Public Engagement and NLSUPPORT staff is gratefully acknowledged. This project was possible because of the funds we received from the now-closed Office of Public Engagement in St. John’s campus, Memorial University. This office and its dedicated staff were critical in our success. We are unsure at the moment whether we can continue this and other group projects without funding. That is the sad reality of budget cuts.

We are incredibly honored to have published our experience, perspectives, and lessons learnt in this publication. It also gave us a unique opportunity to advocate for better public and patient contributor compensations globally.

This project has been fueled by care and compassion that we feel towards the people affected by cancer.

Cancer affects 2 in 5 people in our province. Its effects extend to family, friends, workplaces, and communities.

While we thought (and still think) that it is the obligation of the government of NL and the NL Health Services to inform and empower our population, we wanted to do our part as dedicated advocates.

Our group has been advocating for better cancer care, risk reduction, treatment, support services, and a system that works for all.

Please join us by reading the blogs, listening to our podcast episodes, and advocating for a better future in NL and beyond.

Thank you.

Sevtap Savas, PhD. October 19, 2025. St. John’s

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October 19, 2025October 19, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, blogging, Canada, cancer, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Immigration Matters: Fighting for better cancer care

Thank you Government of Canada, Immigration and Citizenship for this wonderful opportunity & recognition.

If we can get together, there is nothing we cannot achieve. One day, we will eradicate this disease called cancer.

Thank you Canada, Newfoundland and Labrador & patient partners for adopting me, making me one of yours and giving me the conditions to become something I have never imagined of.

Better days ahead for all of us.

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July 28, 2025July 28, 2025 by sevtapsavas Categories: BlogTags: Advocacy, Canada, cancer, Cancer Care, immigrants, immigration matters, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, personal lived experience, Public Engagement, Public Outreach, St. John's Leave a comment

Episode 28 – Cancer care is team care

In this episode we have Dr. Melanie Seal, and oncologist with the NL Health System explaining the main treatment modalities in cancer and how different oncology professionals coordinate together to provide the best care to patients.

Take a look

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July 22, 2025July 22, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Cancer Care, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, Oncology, Podcast, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Episode 27 – Experiencing cancer as a community member in the Big Land

Our guest in this podcast is Justin Andrews from Labrador 🙂

In this episode, Justin shares his reasons to advocate for people and Labrador communities, barriers to healthcare access, community and other support in Labrador that help address cancer’s impact, and champion healthcare providers in the region.

Take a look

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July 22, 2025July 22, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, cancer, Labrador, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach Leave a comment

Episode 26 – Hereditary cancers

We are pleased to air our 26th podcast episode today 🙂

Wondering about cancers running in the family and what you/we can do about them?

Dr. Lesa Dawson explains

Listen to her🎧

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June 18, 2025June 18, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, Hereditary cancers, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, ovarian cancer, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach Leave a comment

Episode 25 – Joy of reducing suffering through psychosocial oncology

Listen to our new podcast with Dr. Sheila Garland on psychosocial oncology and healing in cancer!

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June 18, 2025June 18, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Podcasting, psychosocial oncology, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Episode 24 – Patient influencers of research

In our newest podcast episode, Dr. Holly Etchegary talks to Jason Wiseman and Janine-Taylor Cutting about how patients and family members influence and progress the health-related research.

Take a look ❤️

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May 17, 2025May 17, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, cohosts, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, patient oriented research, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach Leave a comment

Episode 23 – Patient-oriented research from a patient partner & leader perspective

We are pleased to air our new podcast!

In this episode, Janine Taylor Cutting an Sevtap Savas talk to Lisa Ridgway, a powerful patient partner and leader from British Columbia

Together, they dissect what patient-oriented research means and how we all can contribute to this meaningful research strategy

Take a look

#NewfoundlandAndLabrador#PatientLeaders#PublicEngagement#PublicOutreach#StrategyForPatientOrientedResearch#podcasting

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May 4, 2025May 4, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, patient leaders, patient oriented research, patient partners, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Episode 22 – “Cancer is preventable, treatable, beatable”

We are pleased to air our new podcast!

In this episode, Tracy Slaney and Sevtap Savas talked to Barry Stein, the director of Colorectal Cancer Canada, a community support organization focusing on colon and rectal cancers in Canada.

Barry candidly shared his story with cancer and how this experience shaped his advocacy and leadership.

Take a look.

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May 4, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Colon Cancer Canada, Colorectal Cancer Canada, community support organization, Newfoundland and Labrador, Podcast, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Advocating to House of Assembly_Newfoundland and Labrador

Advocacy is something we naturally do when we partner with public members.

Pleased to advocate on behalf of people affected by cancer in Atlantic Canada by emailing the following to all 40 members of the House of Assembly in Newfoundland and Labrador:

————–

Dear Members of House of Assembly – Newfoundland and Labrador,

Cancer touches everyone.

When it strikes us, or someone close, we know that they need support, and we all want to help. 

As an elected representative, your role is crucial, and your actions can save lives. 

The Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) is part of the national Marathon of Hope Cancer Centres Network. Our membership includes 15 members from Atlantic Canada, 11 of whom are public members affected by cancer. I proudly lead this group.

Together, ACC PAC has identified priorities to improve access to care, and has published an academic paper with their results – you can access it here free of charge: https://link.springer.com/article/10.1007/s44250-025-00201-1 

We invite you to take a look at the priorities identified in our paper to explore ways to address them in our region, and reach out to us with suggestions about how you may be able to fast-track improvements. 

We are happy to meet in person or virtually.

Thank you and kind regards,

Sevtap

Thanking Bev P. for her valuable help with the content.

Sevtap Savas, PhD, ACC PAC lead.

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April 14, 2025April 14, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee), BlogTags: Advocacy, Atlantic Cancer Consortium, cancer, House of Assembly, Newfoundland and Labrador, Patient Advisory Committee, Public Engagement, Public Outreach, St. John's Leave a comment

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