Strength in Community

Showcasing Public Engagement in Research

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Tag: Canada

Episode 26 – Hereditary cancers

We are pleased to air our 26th podcast episode today 🙂

Wondering about cancers running in the family and what you/we can do about them?

Dr. Lesa Dawson explains

Listen to her🎧

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June 18, 2025June 18, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, Hereditary cancers, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, ovarian cancer, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach Leave a comment

Episode 25 – Joy of reducing suffering through psychosocial oncology

Listen to our new podcast with Dr. Sheila Garland on psychosocial oncology and healing in cancer!

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June 18, 2025June 18, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Podcasting, psychosocial oncology, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Episode 24 – Patient influencers of research

In our newest podcast episode, Dr. Holly Etchegary talks to Jason Wiseman and Janine-Taylor Cutting about how patients and family members influence and progress the health-related research.

Take a look ❤️

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May 17, 2025May 17, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, cohosts, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, patient oriented research, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach Leave a comment

Episode 23 – Patient-oriented research from a patient partner & leader perspective

We are pleased to air our new podcast!

In this episode, Janine Taylor Cutting an Sevtap Savas talk to Lisa Ridgway, a powerful patient partner and leader from British Columbia

Together, they dissect what patient-oriented research means and how we all can contribute to this meaningful research strategy

Take a look

#NewfoundlandAndLabrador#PatientLeaders#PublicEngagement#PublicOutreach#StrategyForPatientOrientedResearch#podcasting

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May 4, 2025May 4, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, patient leaders, patient oriented research, patient partners, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Episode 22 – “Cancer is preventable, treatable, beatable”

We are pleased to air our new podcast!

In this episode, Tracy Slaney and Sevtap Savas talked to Barry Stein, the director of Colorectal Cancer Canada, a community support organization focusing on colon and rectal cancers in Canada.

Barry candidly shared his story with cancer and how this experience shaped his advocacy and leadership.

Take a look.

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May 4, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Colon Cancer Canada, Colorectal Cancer Canada, community support organization, Newfoundland and Labrador, Podcast, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Year end report to the community

Dear folks,

We are pleased to report back to the community in Atlantic Canada about our impactful and productive work.

You can find a recap published in Telegram here: https://www.saltwire.com/newfoundland-labrador/letter-atlantic-cancer-consortium-patient-advisory-committee-reflects-on-its-successful-year

A more detailed report is posted below.

We thank you for your support to our activities.

On behalf of ACC PAC, Sevtap Savas, PhD. St. John’s

ACC PAC_Year End Summary – April 2025_websiteDownload

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April 10, 2025April 10, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Advocacy, Atlantic Canada, Atlantic Cancer Consortium, Canada, cancer, Marathon of Hope, Public Engagement, Public Outreach Leave a comment

Podcast episode 21 – “But Don, all cancers are treatable”

Welcome to our new podcast!

Our guest today is Dr. Don Desserud!

Don has brough fresh perspectives to our podcast as someone with lived experience of cancer and as a political science professor from PEI.

We talked mainly about two important topics:

1.     Impact of clinic communication on patients and importance of trauma-informed communications by healthcare providers

2.     Practical tips for advocacy at the government level

We hope that you will enjoy this episode as much as we have.

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April 6, 2025April 6, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Lobbying, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, PEI, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach Leave a comment

Conference recordings_Cancer is Personal: Humanizing Precision Medicine in Atlantic Canada

We are pleased to share the recorded talks delivered on March 15, 2025, as part of the public conference named Cancer is Personal: Humanizing Precision Medicine in Atlantic Canada!

We thank all speakers for making their talks public and tech staff for making this possible.

On behalf of ACC PAC, Sevtap Savas, PhD.

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April 2, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Atlantic Canada, Atlantic Cancer Consortium, Canada, cancer, Marathon of Hope, Marathon of Hope Cancer Centres Network, Memorial University of Newfoundland and Labrador, New Brunswick, Newfoundland and Labrador, Nova Scotia, patient navigator program, patient stories, PEI, Precision Medicine, Public Conference, Public Engagement, Public Outreach, Terry Fox Leave a comment

New paper by the Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC)

We are pleased to share our scholarly paper published in Discover Health Systems journal this week!

In this paper, we describe the formation of our team (ACC PAC) and the patient and family priorities its members identified regarding cancer and precision medicine in Atlantic Canada.

The ACC PAC identified priorities in two categories:

  1. Addressing needs of everyone affected by cancer equitably, and the whole patient and family
  2. Increasing awareness, access, and affordability of precision medicines

You can freely access this manuscript here: https://link.springer.com/article/10.1007/s44250-025-00201-1?utm_source=rct_congratemailt&utm_medium=email&utm_campaign=oa_20250324&utm_content=10.1007/s44250-025-00201-1

Better days ahead

Sevtap Savas, PhD.

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March 26, 2025March 26, 2025 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee)Tags: Advocacy, Atlantic Canada, Atlantic Cancer Consortium Patient Advisory Committee, Canada, cancer, knowledge dissemination, Marathon of Hope, Priorities, Public Engagement, Public Outreach Leave a comment

Podcast Episode 20 – Experiences and perspectives by a queer cancer warrior

Please join Stephanie Howlett chatting about ovarian cancer, being a cancer warrior and queer person affected by cancer in this new powerful podcast episode!

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March 21, 2025March 21, 2025 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, being queer, Canada, cancer, cancer warrior, Newfoundland and Labrador, Podcast, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

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