Strength in Community

Showcasing Public Engagement in Research

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Tag: Memorial University of Newfoundland and Labrador

Episode 14 – “You are not alone”. Mike Kehoe shares his messages of hope for all folks out there

In this last episode of our Season I, we talked with Mike Kehoe, a community member and person with a lived experience of prostate cancer. Mike shared not only his experience with us, but also his positive and empowering messages.

We are grateful that he took his time to converse with us.

Take a look:

We hope to be back with Season II next year, pending funding. We really enjoyed this experience, having wonderful guests and co-hosts, and learning from each other. Hope you will find time to listen to our podcast and perhaps be a guest in one of them in the future.

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July 5, 2024July 5, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, Lived Experience, Memorial University of Newfoundland and Labrador, messages of hope, Newfoundland and Labrador, NL, prostate cancer, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Episode 13 – “I have led people to the promised land, but I could not enter the promised land. In memory of Dr. Robin McGee”

Our condolences to Robin’s family, friends, and the cancer community in Canada and beyond. Robin passed away from colorectal cancer in June 2024 after 14 years living with it . She was a fierce advocate and change-maker.

In this episode we talked with Robin and Hope Gillis about cancer, advocacy and coaching. It is one of a kind episode and hearing Robin speaks makes us even more determined to keep going. We have gigantic shoes to fill.

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July 3, 2024July 3, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, cancer coaching, cancer lived experience, change-making, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Podcast, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, Robin McGee, St. John's Leave a comment

Episode 12 – Indigenous Patient Navigator Program in Newfoundland and Labrador – Ashley Dicker shares important knowledge about this impactful healthcare service

We are very excited to air this informative and fascinating podcast with Ashley Dicker on Indigenous Patient Navigator Program available in Newfoundland and Labrador.

This program is designed to support Indigenous persons traveling for medical care in the province. Six Indigenous Patient Navigators in the province provide all bunch of services and support, making sure the Indigenous patients will be cared best and will feel at home while they are away from home.

Thanking Ashley for this amazing session.

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June 17, 2024June 17, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, FirstLight, Indigenous Patient Navigator Program, Indigenous Peoples, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, NL Health Services, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Episode 11 – Push For Your Tush! Listen to Tracy how her family is living with cancer but not ruled by it

This is one of the coziest and most fun chat we have had folks – take a look at it 🙂

In this episode, Tracy and myself (Sevtap) chat about colon cancer, lived experience as a caregiver, advocacy, rising funds and rising awareness about screening tests, and the Push For Your Tush fundraisings event organized by Tracy and Colon Cancer Canada in three cities in Newfoundland and Labrador in June and July.

These are community events that aim to bring folks and families together. You can walk with them, say hi, or make a donation to support their causes.

Push For Your Tush St. John’s: https://ccc.akaraisin.com/ui/pushforyourtush2024/g/newfoundland

Date: July 5th, 2024

Location: Petten Building, Strawberry Marsh Road

Push For Your Tush Southern Harbour: https://ccc.akaraisin.com/ui/pushforyourtush2024/g/southernharb

Date: June 20, 2024

Location: Laurentian Grounds

Push For Your Tush St. Lawrence: https://ccc.akaraisin.com/ui/pushforyourtush2024/g/stlawrence

Date: June 13th, 2024

Location:  Lacey Allen Memorial Playground


Come join these dedicated advocates!

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June 4, 2024June 4, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Cancer Screening Test, Caregiver, Caregiving, Colon Cancer, Colon Cancer Canada, colon cancer screening, FIT test, FundRaising, Lived Experience, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, Push for Your Tush, Rising awareness about cancer, St. John's Leave a comment

Episode 10 – At the intersection of being trans and having gendered cancer – PART II: Interview with James Moriarty and Dr. Joannie Neveu

In this episode, we continued our conversation with James Moriarty about his experiences of being a trans man with a history of cancer in an organ associated with female sex assigned at birth (you can find PART I here).

Dr. Neveu, who cares for a few trans persons with cancer in Newfoundland and Labrador, provides unique insights into how her cancer care practice looks like.

There is a lot to learn – please take a look at our latest podcast:

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May 24, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: being trans and having cancer, Canada, cancer, Cancer Care, gendered cancers, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's, trans individuals, Transgender health Leave a comment

Episode 9 – Those with lived experience are the best teachers and speakers: Listen to our chat with Stephanie Budgell

In this podcast episode, Janine and Sevtap talked with Stephanie Budgell, a young person with a history of cancer and a long period of advocacy.

This is one of the coziest conversation we have ever had 🙂

Take a look:

https://podcasters.spotify.com/pod/show/sevtap-savas/episodes/Episode-9–Those-with-lived-experience-are-the-best-teachers-and-speakers-Listen-to-our-chat-with-Stephanie-Budgell-e2j892l

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May 24, 2024May 24, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Advocacy, Canada, cancer, Lived expoerience, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach Leave a comment

Promotion Video – Public Event on Transgender Individuals and Cancer

It was so much fun to shoot this promotional video on our upcoming public and virtual event “A Documentary Screening and Panel Discussion Event on Transgender Individuals and Cancer“

May 16th, 2024

REGISTRATION: https://shorturl.at/gsuKY

We gratefully acknowledge that this video is created by Shamila Yazdanpanah using Canva Pro. We are grateful for our funder (Office of Public Engagement at Memorial University) and our project partner, Quadrangle NL.

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May 9, 2024May 9, 2024 by sevtapsavas Categories: Blog, Public Interest Group on Cancer ResearchTags: 2SLGBTQIA+, Canada, cancer, Hransgender individuals with cancer, irtual event, LGBTQ, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, Quadrangle NL, St. John's, Transgende health 1 Comment

Reporting back to Community in Atlantic Canada through media: April -May 2024

We are excited to communicate our work and goals with the very people we aim to benefit – the residents of the Atlantic Canada (and beyond).

In addition to circulating or Year End Report, we also published two articles in local media about how we formed and why, and what have we accomplished in such a short time (we were created in January 2024!).

Please take a look at these articles
Here and here.

if you have any feedback or comment, we will be delighted to hear them. Please send your thoughts to savas{at}mun.ca or place them in the comment box below.

With our best wishes,

Sevtap Savas, PhD. Lead, ACC PAC May 8, 2024 St. John’s, NL

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May 8, 2024May 8, 2024 by sevtapsavas Categories: ACC PAC (Atlantic Cancer Consortium_Patient Advisory Committee), BlogTags: ACC PAC, Atlantic Canada, Atlantic Cancer Consortium, Canada, cancer, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Patient Advisory Committee Precision Medicine Marathon Of Hope Cancer Centres Network, Public Engagement, Public Outreach Leave a comment

Episode 8 – “I had a tumor of the size of a tissue box” –Bonnie Morgan and Alana Walsh-Giovannini tell us about ovarian cancer and Belles with Balls

We are pleased to air our latest podcast today!

In this episode, we talked with Bonnie Morgan and Alana Walsh-Giovannini.

Together we talked about ovarian cancer, lived experience, messages of hope, the charity organization they have founded (Belles with Balls), and most importantly how a dedicated team of 8 women have raised more than half a million dollar to support ovarian cancer education and research in Newfoundland and Labrador!!

We thank every volunteer and donor who are working towards a better future for women.

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May 4, 2024May 4, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Belles with Balls, Canada, cancer, Memorial University of Newfoundland and Labrador, messages of hope, Newfoundland and Labrador, NL, ovarian cancer, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, St. John's Leave a comment

Episode 7 – Do you get patient-centered cancer care? A cozy, hopeful, and inspirational chat with Dr. Maisam Najafizada

Our special guest today was Dr. Maisam Najafizada 😊

Dr. Najafizada is the interim Assistant Dean of Social Accountability and an assistant professor of Health Policy at the Faculty of Medicine, Memorial University.

In this episode:

  • Dr. Najafizada and Sevtap chat about everything from what it means to have a patient-centered cancer care to the current state of healthcare in Canada, existing barriers and opportunities, and social accountability activities
  • There is something exciting and useful information for everyone in this episode, from cancer care to science and health policy

Please listen to our great chat here:

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April 24, 2024April 24, 2024 by sevtapsavas Categories: Public Interest Group on Cancer ResearchTags: Canada, cancer, DR. Maisam Najafizada, health Policy, Memorial University of Newfoundland and Labrador, Newfoundland and Labrador, NL, Patient-centered cancer care, Podcasting, Public Engagement, Public Interest Group on Cancer Research, Public Outreach, Social accountability, St. John's Leave a comment

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